Relatively rare, AMC occurs in 1 out of every 3,000 live births. AMC is used to describe the presence of multiple congenital contractures. The phrase Arthrogryposis Multiplex Congenita describes a family of abnormalities and literally means arthro – joint, gryp – curved, congenita – are present at birth. While generally affecting the extremities, it can also affect the spine, cranial structures and central nervous system and can cayse death in some if not treated at the appropriate time, usually early childhood. Here in Staten Island, there are five documented cases of AMC. As with such rare conditions, there may be more cases that have not been reported.
Through the Music Festival, we are trying to raise money to help those families affected by AMC in our community and nationally receive the services they desperately need.